Long Haul Voices: Living with Long Covid and ME/CFS
Long Haul Voices is a mini-series created in partnership with Solve ME that amplifies the experiences of individuals with Long Covid and ME/CFS, the experts devoted to improving their care, and the challenges surrounding these largely invisible, poorly-understood diseases that affect a rapidly growing population.
in collaboration with
OFFICIAL TRAILER
watch the complete series
Episode 1: LONG HAUL PATIENTS
Chronic diseases can profoundly impact people’s lives and identities. Individuals with ME/CFS and Long Covid answer key questions:
How do you create a “new normal” when goals, dreams, relationships and careers are forced to change? What changes about life and relationships with chronic disease? How does your identity and your disease interact?
Episode 2: LONG HAUL RESEARCH + CARE
There are important relationships among patients, their medical teams, and the researchers trying to understand their disease. Sometimes these relationships are built on respect and care, and sometimes misunderstanding and dismissal. How these partnerships play out has an enormous impact on patient outcomes.
Executive Producer: Solve ME
Producers: Solve ME, Unfixed Media
Director: Kimberly Warner
Editor: Michael Wolcott
Episode 3: LONG HAUL ADVOCATES
Premiering 6/30 on The Disorder Channel
World premiere on Solve youtube channel 7/7
In the chronic disease community, there are two types of advocacy: self advocacy and systems advocacy. Prominent community advocates help us understand how patients, scientists, clinicians, and caregivers can become empowered to become advocates who raise their voices in the halls of power.
