https://unfixedmedia.com/new-index daily 1.0 2026-02-03 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1572207083373-X75VHFOTJ8JH3TPBKSLY/white.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1572207083373-X75VHFOTJ8JH3TPBKSLY/white.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648749262499-YF9QQTHZVM6YE7ZGLKWL/White_background.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648756833191-2P26CGU9MR2BUKN63737/teal.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648757105950-3T9KCXBUCRPUX7RBTVJP/teal.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1698360652247-V7N28QEKWLSZL0THK437/violet.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1576261046408-KSKL8JC2XO1NDUMN13HP/Dylan_sq.jpg unfixed media productions - Dylan - Lou Gherig's Disease I began my studies at NUNM in the fall of 2012 in the Doctor of Naturopathic Medicine and the Master of Science in Oriental Medicine degree programs. It was incredibly gratifying to be applying myself to a career path that was so aligned with my desire to be of service and make a lasting impact in the lives of my future patients. This path offered me both left and right brain growth. It allowed me to quench the thirst of my scholarly mind by blending the medical wisdom of the ages with the endless expanse of scientific discoveries. It also gave me another reason to sink into the root of my being through meditation and Qi Gong, to become the conduit and catalyst, rekindling the desire to nurture life. I was highly active with all the inspiration and stimulation at NUNM. To advocate my vision for the direction of our education, and ultimately our profession, I ran for the program and curriculum review committee student rep position through our student government. After two years on that committee I wanted to continue the mission upstream. I spent the next two years as the student rep to the board of directors, where I made full use of the five minutes allocated for my speeches. I might have gone over a couple times in my passion to give voice to the challenges of being truly a holistic medicine in a reductionistic and materialistic medical environment. Another addition to my load was upgrading to the newly created Doctor of Science in Oriental Medicine degree program. To get some business experience and promote food as medicine in the community, I built a solar powered food cart on a flatbed trailer. I brought it to special events and farmers markets in the summers. The final endeavor was putting on English immersion summer camps for Japanese high school students. My motivation was to provide climate change education, cultural exchange, and camping in the wilderness. As much as I wanted to continue to cruise along, my body would say otherwise. In the winter of 2017, my fifth of the six-year programs, my father was diagnosed with end-stage lung cancer. NUNM worked with me to add a year to my programs so that I could assist my father. That spring my first symptoms began. Initially it was shoulder stiffness, then gradually my right hand weakened, until I couldn't use my dominate hand for anything by that summer. And thus began the marathon of adaptations to work with what I have. That summer I developed my left-hand dexterity remodeling my dad's rental to get him some income, and further progressed on my acupuncture shifts that fall. Finally, I could eat sushi with chopsticks. I was falling behind typing one handed for my classes and clinical charts. I set out to become a wizard of voice to text using Dragon software and soon rivaled two hand typing speeds. All along I was seeing all sorts of specialists. The neurologist ran a gauntlet of blood work and ordered an MRI. Coming in to discuss the results, my worst-case scenario was having to negotiate with him recommending surgery. He said that the MRI didn't provide any smoking gun and all the tests came back negative, therefore his leading suspension was ALS, amyotrophic lateral sclerosis, or Lou Gehrig’s disease. Surgery sounded fine after that. ALS is too rare for him to diagnosis, so he referred me to the ALS specializing neurologist. She agreed that it was most likely ALS, but I didn't meet the diagnostic criteria without multiple limb weakness. She suggested it could also be brachial neuritis. One source stated that ALS has a 90% three-year fatality rate, whereas brachial neuritis has about 90% spontaneously recover. I was in limbo for months, both alive and dead, a real-life Schrodinger’s cat. I was officially diagnosed with ALS in April of 2018 after my left hand became clearly weak. I continued at NUNM with wonderful support and accommodations for my rapidly changing body. The next fall quarter I was in a wheelchair and eventually came to school in medical transports to avoid transfers. The silver lining was being able to focus entirely on my patients with the medical scribe assisting me. I was two quarters from my graduation. My breath capacity became so low that my voice was barely audible making clinic infeasible. I had to make the hardest decision to withdraw from NUNM. A few months later one of my professors notified me that she had petitioned the board of directors on my behalf and they had voted to award me honorary doctorate degrees for naturopathic and Chinese medicine that June 2019. I was overwhelmed with gratitude for this unprecedented honor. I gave a speech at commencement through my communication device and was able to “walk” with my classmates. I've always believed that as one door closes, two open. A great surge of vitality came through me writing the speech. Living with a tracheostomy challenges me daily. Therefore, I wanted to establish a clear purpose, stay inspired, and develop a platform to be of service to humanity through my writing. To remedy the potential catastrophic loss of life due to climate change, I intend to generate revenue from publications to develop lands for reforestation. I know it is possible from examples like Zen Buddhist monk, Thich Nhat Han, who used his books to create Plum Village, his meditation retreat center in France, and the holy prophet, Bahaullah, who utilized his many decades of imprisonment to write the foundations of the Bahai religion. His story is especially inspiring to me because ALS is like a prison. I have been working with what I have since the 2017 summer using only my left hand. With my body immobile now, I have my eyes and my eye-controlled tablet that I can write about my unique experiences through this rare disease process. I am an explorer of the human spirit. It is a different kind of adventure, but I maintain the same openness and appreciation for the invisible guiding hand through this journey. As much as I would like to condemn the circumstances of my life now, I recognize this new chapter of my life can be transformational. We must let go to receive. In the six months around my diagnosis of ALS, one of my two dogs died, one of my two cats died, my mom's mom died, my dad's dad died, my dad died, my marriage died, and again, I was diagnosed with an uncurable disabling terminal illness. I believe I am still being directed towards the growth my soul requires. I would no much rather deny myself the experiences that came with being lead to aikido and Kobayashi dojo, as I would now with ALS and embarking on this Life Breath mission as a writer. I have purpose and that gives each ventilator assisted breath I take meaning; coming together as one people, of fully self-realized individuals, to nourish and protect life. To read Dylan’s full bio and learn more about his non-profit organization, visit: www.lifebreath.net https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1593045206478-BWTUVN980L263QO84MGU/IMG_7439.jpg unfixed media productions - William - Tourette's Syndrome My name is William J. Atkins IV. I currently attend McKinley Technology High School. I am a part of the National Honors Society and I am also on the Varsity Swimming Team. I was diagnosed with Tourette’s Syndrome in May of 2018. Having Tourette’s has changed my life completely for the better. It has made me a stronger, kinder, more compassionate young man. I use my social media platform to spread awareness about my Tourette’s Syndrome. With that being said, I am now an official Youth Ambassador for the National Tourette’s Association of America. As a Youth Ambassador, I had the opportunity to be a keynote speaker at this year's Youth Ambassador training held on Capitol Hill, Washington DC. I spoke with various Senators, House of Representatives, and my fellow youth ambassadors who have Tourette’s as well and shared with them my journey in living with my superpower. I have also had the honor and privilege to be a part of a wonderful documentary by the name of Unfixed. Unfixed is a documentary brought to you by a phenomenal woman name Ms. Kimberly Warner. The documentary tells stories about people living with different disabilities and how we all conquer our everyday livelihoods. Unfixed has allowed me the ability to process my thoughts when it comes to my life with Tourette’s and how I can continue making the best out of it. I am no different from anybody else, with the guidance of GOD, my family, and life experiences I plan on being a positive role model not just in my community but worldwide, nationally and internationally. I am William J. Atkins IV. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1587491511148-44KDC5NK9N00KNUN0JMB/IMG_7137.jpg unfixed media productions - Jeneye - Transverse Myelitis Jeneye is also the CEO of the Argosy Foundation where she is responsible for promoting its vision of empowering all people to make a positive difference in their worlds. Moreso, she is a mother who hopes to empower her kids to do the same. Eleven years ago, in the middle of walking through her house, Jeneye's left leg stopped listening to her brain. Other symptoms, including body aches, fatigue, and involuntary muscle movement, started to appear. Eventually she was diagnosed with transverse myelitis as a result of a lesion on her spinal cord. Her symptoms can last anywhere from a minute to a day. At times, she powers through her symptoms, sometimes (and I quote) “walking like a zombie”, which can be entertaining if the achiness and fatigue aren’t bad. Other times, when available, she seeks peace and solitude to ride out the flare-ups. Her love of laughter and comedy has been a lifeline for her as she adapts to, and evolves with, her condition. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1601846862117-X9VL6PMJ2CG9GLRR9KT9/shaya2020.jpg unfixed media productions - Shayla - Crohn's Disease I am a young musician, artist, mother and wife living in coastal Oregon. I was diagnosed with a Chron’s Disease earlier in life. The unpredictable nature of this autoimmune disease combined with the heavy medications have affected every aspect of my physical, mental and emotional well-being and yet it is also helping me discover an inner strength, resilience and creativity that I might not have known so intimately without it. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1583073137010-2RVCIT3BGDRPIZUI0VFF/Todd%2BVogt_SQ1_31_20.jpg unfixed media productions - Todd - Parkinson's Disease My story begins in the fall of 1992, when I joined the rowing team as a freshman at the University of Buffalo, in Buffalo, NY. I immediately fell in love with the sport, particularly the physical and mental challenge, and being on the water. As a rower, I loved the training, the team atmosphere, and identity it provided me. I rowed all throughout college and continued to row competitively for several years after college. Recently I’ve been rowing at the Masters level, meaning as an adult with a job and other responsibilities. Things changed in the fall of 2017. I was doing my normal training and getting ready for a big race, the Head of the Charles, which takes place at the end of October in Boston, MA. Something seemed different this fall. My rowing technique, which I spent years working on, felt wrong. I also felt unusually tired and weak. I shrugged it off and thought I was just getting old or needed to change my training. Unfortunately, the feeling of fatigue didn’t improve and actually got worse. Then in the spring of 2018 I developed a tremor in my left hand and foot, and my left arm would longer swing when I walked. After seeing several doctors and several diagnostic tests, I was diagnosed with Early-Onset Parkinson’s Disease. This was just before my 44 birthday. I didn’t know how to take that diagnosis at first. One of the first things I thought was my days as a competitive rower were over. After several months of dwelling on things, I returned to rowing, albeit, slower and more awkwardly than I’d like. During the spring of 2019 I reached out to USRowing, the governing body of rowing, inquiring about being designated as an adaptive or Paralympic rower, thinking it would allow me to compete in local races. I ended up getting invited to the Paralympic training camp in Boston in early June and eventually ended up in two-person boat that raced at the 2019 World Rowing Championships in Linz, Austria finishing in 6th place. My main symptoms are a significant tremor in my left hand and left foot, my left arm doesn’t swing while I walk, I have trouble sleeping, and I have anxiety that I never had prior to the onset of the Parkinson’s. To treat the disease, I do a variety of things including taking traditional pharmaceutical drugs, using a hyperbaric chamber, taking a variety of supplements, as well as other treatments. Currently I’m training full-time with the goal to qualify for the Tokyo Paralympics in the summer of 2021. I’m currently training approximately 20 hours a week between rowing, weight training, cycling, and yoga. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1584219059116-DPE1KLNNIBKUGSVSI65G/Screen+Shot+2020-03-14+at+1.42.47+PM.png unfixed media productions - Brian - Traumatic Brain Injury So I grew up in a great environment. My dad was an artist and my mother was a teacher. In the late 70's, early 80's I went to RIT where I got a bachelor of fine arts in photography and an associates in science and psychology. In the mid 80's I assisted a well known fashion photographer in New York City. We traveled all over the world. In the mid to late 80's I got married and moved to Australia. In Australia, I worked as a fashion photographer and established my style which was very much like Elle Magazine. In mid to late 80's I moved to Paris, got divorced, and worked as a fashion photographer for Madame Figaro, International Elle, as well as the other usual suspects. Life was crazy back then. I had agents in Paris, London, New York, Munich, Milan, Sydney. I would go wherever there was work. Life was like a big party. In the mid 90's, I moved to New York City. I got tired of doing the starving young artist thing and did mostly commercial work. I got remarried and had a baby girl, built a house in Montauk, New York, and lived out there. In 2009, I had a massive brain bleed and an emergency operation. I got divorced and had another brain bleed in 2010, and another brain operation. I've had many seizures since that and now live with 24 hour care. My seizures are life threatening. In the past I was always very active. I was on a relay team that ran across america and got in the Guinness Book of World Records. I was an avid NCAA runner. I held many different records. I ran close to a 4 minute mile pace. I was an avid tennis player, scuba diver. I did wind-surfing and surfing, skiing, golfing and I was a brown belt in tae quon do. In Fall 2013, I embarked on a cross-country road trip to photograph the American landscape as I see it: through the eyes of a traumatic brain injury survivor. Right now, I just take one day at a time. Who knows what the future will bring. You never know what's around the corner. Just stay positive. - B. Nice. https://www.briannice.com/ https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1579021121612-P83KMB1V51V3SQDWHV0E/Briana_sq.jpg unfixed media productions - Brianna - Ehlers-Danlos Syndrome Hi, I'm Brianna! I'm a Physician Assistant, Certified Athletic Trainer, and Professor specializing in chronic pain management. I have almost a decade of patient care experience and a lifetime of experience with chronic pain. I have a condition called Ehlers-Danlos Syndrome, which caused me to develop Craniocervical Insatbility (CCI) a Spinal CSF leak and dysuatonomia. All of these are considered rare diseases, and I had to fight hard to even get a diagnosis- let alone treatment. I'm grateful to have a better quality of life since making my health a priority. My mission is to help others find relief from chronic illness so that they may live their best life. I believe education is the key to becoming healed and empowered! I created a website to offer people a great starting point to find the tools they need to start re-claiming their health. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1575907335418-2HDNJNTON95E5C54VZ55/stefanie-grant-bw.jpg unfixed media productions - Stefanie - Facial pain disorders, Fibromyalgia My name is Stefanie and I am 32 years old. I have suffered from constant 24-hour pain for over 10 years. I spent most of my 20’s in and out of hospitals, attending hospital appointments and feeling like I’d lost the life I had planned. In 2012 I met a very special person who encouraged me to get online and start sharing my experiences. It was there that I found many friendships and a community in which I could finally belong. At the time I started my blog there weren’t a lot of people out there talking about orthographic surgery and chronic pain. Those who were, glamourised the process and seemed to have a fabulous time with it. My story was a lot different. Many things were unusual, and things didn’t ever go to plan. Even up to this point, I baffle my doctors and my pain management team try their best to understand what might help me. I am still trying to accept the life I live and be thankful that I am now able to work again and have some sort of normal life living unfixed. In 2016 I was diagnosed with Chronic Fatigue Syndrome, Fibromyalgia, chronic face pain, TMJ Disorder, Trigeminal Neuralgia, Optical Neuralgia and hypermobility. I suffer from continuous face, head and upper body pain. I also suffer from terrible migraines, cluster headaches, cystitis and hormonal issues. For the last two years my pain has become worse and I now have issues with my legs, hips, wrists, shoulder and ankles. After several traumatic life experiences, big surgeries and living with 24 hour unrelenting pain I developed a number of mental health conditions. These include; depression, anxiety, agoraphobia, low self-esteem, PTSD and body dysmorphia. From a professional standpoint I have a first-class honours degree in HR and business management and 28 business related qualifications. I have worked for a variety of companies from large corporates like Lidl and Compass, to small independent businesses in London and Essex. I have a great deal of knowledge in HR, auditing, finance, digital, tech and marketing and now use these skills to run 2 successful home businesses. A app and marketing consultancy and a PA services business. My illnesses and pain hold me back from having a normal 9-5 job, so I have worked hard to adapt and make the best of a bad situation. My links are below: Blog - www.jawandface.co.uk Instagram - www.instagram.com/jawandface Twitter - www.twitter.com/jawandface Business - www.thealtitudeagency.com https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1645202164574-6JEB6K3MUA2PLWI71LYH/ReneBWNew.jpg unfixed media productions - Rene - Trigeminal Neuralgia https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1595087862891-PC6HHP5RLZRI9NOTARIR/Black-and-White_Portrait4by5.jpg unfixed media productions - Elizabeth - Multiple Sclerosis Elizabeth Jameson is an artist and writer who explores what it means to live in an imperfect body as part of the universal human experience. Before her diagnosis of multiple sclerosis, she served as a public interest lawyer representing incarcerated children; she later represented children living with chronic illnesses and disabilities in their attempts to receive medically necessary care. As her disease progressed, she began using her MRI’s to create art as a way of reclaiming agency of her own medical data. She transformed the unsettling, clinical images into work that invites people to open up conversations about what it means to have an illness or disability. Her work is part of permanent collections both nationally and internationally, including the National Institutes of Health, major universities, and medical schools. She now writes personal essays and speaks across the country sharing her experiences living with illness and disability. Her essays have been published by The New York Times, British Medical Journal, WIRED magazine, and MIT’s Leonardo Journal. Her essay, “Losing Touch, Finding Intimacy,” was included in the New York Times book, About Us, released in September 2019 by Norton Publishing. Many of her lectures at medical schools and symposiums have been recorded and shared, including her TedX talk, “Learning to Celebrate and Embrace Our Imperfect Bodies.” Click the links below to view her recent talks: Story of Impact - Stanford Medicine X 2017 Learning To Embrace and Celebrate Our Imperfect Bodies - Stanford TEDx 2017 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1615747456032-KXJTSI8R6WIBUJBQFXLR/mac%252Bbrand%252B-%252B_64A2081.jpg unfixed media productions - Mac - Cerebral Stroke Hi my name is Mac and I suffered a stroke late 2018 after I cracked my neck sitting at the computer which caused a blood clot to form in my brain. (Don’t crack your neck!) My stroke was very large and when I first woke up I had near complete left-side paralysis but because of a number of factors and hard work I have recovered from the worst of my condition. Currently I have plateaued in my recovery and I am now learning how to navigate the world in my new body and continue to adapt with my disability. Before my stroke I worked in the medical field as an EMT and phlebotomist and also worked a side job as a private investigator while completing my bachelor’s degree. My goal was to pursue medico-legal investigation. My stroke has altered my life and I’m no longer able to pursue a career that requires high functioning physicality and quick thinking so I am exploring new possibilities and looking at post-graduate education. While it is sad to close doors I feel I worked hard to open I am also excited to explore and pursue whatever the future brings. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1587940133386-KQ4PGI3X952KEB4CE6BB/IMG_2062BW2.jpg unfixed media productions - Rachelle - Mal de Débarquement Syndrome I'm a 38 year old married mother of 3 boys. I had very humble beginnings, facing challenges no child should. Poverty, violence, homelessness, and multiple forms of neglect and abuse are just a few of them. I struggled with panic attacks, eating disorders and depression beginning at age 9. I became a mom at the age of 18, and my will to live beyond my circumstances screamed louder than the barriers set before me as a product of my past. I forged forward as a single mom, working and attending college to make a better life for my son. I found a man who loved me (baggage and all) and my son. I married that man, built a home and a family with him. I graduated nursing school in 2013. I was drawn to Emergency Medicine, probably because I thrived in chaotic environments (that's all I grew up knowing.) I was passionate about my career as an Emergency Room nurse, and had no plans of leaving until I retired. Some co-workers and I decided to take a 3 day cruise to the Bahamas in January of 2019. I've not been the same ever since. My highly committed brain latched onto the foreign motion of the rock & sway of the ship. I've been diagnosed with Mal de Debarquement Syndrome. Secondary to MdDS I have also developed vestibular migraines as a result from the vestibular dysfunction in my brain. The combination of the two have forced me into early retirement. I've spent the last 16 months learning how to re-define myself and love myself in a whole different way. A new identity not based off of what I do for a living and what I can do for other people. This has taken me on a healing journey that reaches far beyond MdDS and VM, but into the deepest darkest depths of years of trauma. It has pushed and stretched every part of my physical, emotional, and spiritual being. Early into my recovery process my Physical Therapist suggested I try dance therapy. I found dance in college and was instantly attracted to the art of this expression. So much so that I began dancing professionally until the call of nursing lured me away from the demanding job of a dance teacher, studio manager, and elite dancer. The principals of gaze stabilization, spotting, grounding and neuroplasticity are the very tools my PT was trying to replicate in our weekly visits. That's when he suggested I get back into the studio and my "roots." The concept of "dance therapy" wasn't new to be, but it took on a whole new meaning. Dance captured my heart years prior because it gave a voice to my inner life that I could never articulate with words. It gave voice to my pain, anger, sorrow, as well as joy and inner strength. This therapy has brought me into the land of the living and thriving - slowly healing my visual dependency, motion sensitivities, and my wounded soul. The words "incurable" and "disabled" fade away as I dance upon these impossibilities. I've ALWAYS defied the odds and have survived the unimaginable. There's no doubt in my mind that I will continue to do so with grace. The grace and mercy of a loving God and the resiliency of my spirit that screams......I'M A SURVIVOR. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1577664320512-5XORJ7L2JX0SJW6REQ5G/bethany_sq.jpg unfixed media productions - Bethany - Narcolepsy, Cataplexy My diagnosis is type 1 narcolepsy which means I have narcolepsy and cataplexy. Narcolepsy is caused by low levels of hypocretin in the brain which causes irregular sleep patterns and excessive daytime sleepiness. Cataplexy is a sudden, brief loss of voluntary muscle tone triggered by strong emotions. Some other common symptoms of narcolepsy which I have are hallucinations, vivid dreams, and sleep paralysis. Living with narcolepsy means not only working with my sleep specialist to utilize medicine to help combat symptoms but also means daily just combating the ups and downs of excessive tiredness caused by "false" sleep. I'm currently taking a medication at night that does help but definitely does not eliminate all my symptoms. I also try to nap at least once daily as this can sometimes lessen the number of sleep attacks I have throughout the day. (A sleep attack is when I'm forced to sleep and cannot stay awake.) Overall, I like to relate my condition to two analogies. 1. My day feels like I wake with a quarter of a tank of gasoline, so I have to be immensely careful how I spend my energy since I don't get a lot of it. 2. I wake each day and get into the boxing ring with narcolepsy, knowing at several points throughout the day I'm going to be completely knocked out (literally and figuratively). I have to continue getting into the ring daily even though I know I'll lose each time. But, what matters is just getting into the ring and trying. I'm currently 29 and have a bachelor's degree in international studies with a minor in Spanish. I also just got accepted into a masters program for Counseling Psychology and will be starting the program this year. Some of my passions include mental health, traveling, outdoors, and family! I love taking time to paint with watercolors, long walks with my dog (who is also my emotional support animal), spending time in nature whether on hikes, at the beach, or in the mountains, and long talks with family and friends. I'm currently married to my amazing husband, Michael, and we have been married 3 years this October. My condition has certainly changed me in many ways, some positive and some negative. Some of the negatives: I think the biggest is that I have to say no to so much more than I want to say no to, simply because the energy just isn't there. I also struggle feeling like I'm going to let other people down by not showing up or having really bad days. That can definitely lead to moments of feeling low when things are at their worst with my symptoms and I have days where I can't even leave the couch. It's hard to see the world and those you love continue to live at a fast pace when mine has slowed or stopped. Some of the positives: I have gained so much resilience and a better perspective on life to know that just because things are hard doesn't mean you should quit. I also have found out how important it is to take care of yourself and listen to your body. I used to be rather bad at both of those before narcolepsy, but it certainly made me more in tune with what I need. Lastly, I think it has given me a lot more gratitude for accomplishing things in life, even the small moments that I used to take for granted. My number one dream right now is getting my Masters in Counseling Psychology! I want to be able to utilize my degree to help others and advocate for mental health. Another closer dream is seeing the Northern Lights for my 30th birthday this coming year. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1576260837029-46TGNDFDF0DGKKV8D0JE/BrianL_sq.jpg unfixed media productions - Brian - Crohn's Disease Brian Langhans is a husband, father, and “Papa” to his grandson. He was diagnosed with Crohn’s disease 33 years ago when he was 17 after a serious car accident. More recently he was diagnosed with stage 3 kidney disease, along with chronic pneumonia and vision-loss. No one ever said life would be easy but Brian never could have imagined the ups and downs. Throughout the years, Brian has worked hard to show his kids that, even through difficulties, we can succeed at whatever we want as long as we put our minds to it and stay the course. He shows them this by living as such. Brian has been a successful restaurant manager, then a foreman running large high rise buildings in Chicago. Today, he is part owner of a large General Contracting company that builds restaurants, offices buildings and custom homes across the United States. Brian’s determination and faith have given him the strength over the past 33 years living with Crohn’s to become the wise father he is today. Early on in his diagnosis, he recalls saying “Why Me?” Now he says, “Why not me?” knowing that through every adversity, comes strength and a lesson that can ultimately help ease someone else’s suffering. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1613608144909-T7DMWX9UUIGQOH1IOX7O/Kristy.jpg unfixed media productions - Kristy - Bilateral Trigeminal Neuralgia, Bilateral Geniculate Neuralgia, Bilateral Glossopharyngeal Neuralgia Kristy is a wife and a mother first and foremost. She has three dogs, a cat, chickens, a small urban farm and works full time for a law firm. After decades of conflicting mental health diagnoses, medical mysteries and relational struggles that led to isolation, depression and addiction, in her late 30's, Kristy finally became aware that her childhood was more than just troubled, it was the result of compounded generations of abuse, neglect, abandonment and overlapping traumas - including sexual abuse and assault - that finally resulted in a diagnosis of Complex PTSD. This diagnosis and subsequent research was the catalyst to the unravelling of seemingly impossible knots of confusion, pain and heartache. It revealed some of the root causes of many seemingly unrelated issues: mental, emotional, physical and spiritual, that have now become a springboard of hope and healing... not only for Kristy, but for those who she seeks to help. Despite her recent diagnosis of one of the rarest and most painful diseases known to medical science, Bilateral Trigeminal Neuralgia, Kristy refuses to accept its nickname, "the Suicide Disease" because although there is not yet a cure, there IS hope, and she believes life is worth living and it's worth fighting for, no matter how challenging it may be. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1575660711127-4YUBI9577B94ARE04U0C/alaynalorilieallen_spring2019_sq.jpg unfixed media productions - Alayna - Asthma, Severe eczema https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1601849533486-TOOVR9P1UK7R94ZIARG0/Screen%2BShot%2B2020-10-04%2Bat%2B3.08.24%2BPM.jpg unfixed media productions - Jacqueline - Blood cancer (Polycythemia Vera) https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1589903245931-FN8VYMX3VZVHEKFUI39C/IMG_3431BW.jpg unfixed media productions - Sofia - Lyme's Disease - Neurological Bartonella Sofia was introduced to a holistic way of life by her grandmother, who still picks stinging nettles with her bare hands and drinks herbal tea daily for health. Sofia is passionate about healing from a holistic approach, tending to the land, is studying nutrition, loves hiking with her dog, and relies on nature medicine. She was introduced to yoga in high school at a time of high emotional stress and it changed her life. Having a practice to come home to time and time again has been the greatest resource for her on her own healing journey. She is passionate about sharing what has worked with others in order to inspire them to take control of their own health. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1587492111048-ROLG6VD4DKMM84S2JYLN/IMG_7139.JPG unfixed media productions - Janet - Multiple Sclerosis https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1587913111718-DRA0FK5EBHJ0NRKRFI8D/IMG_7161.jpg unfixed media productions - Renée - Traumatic brain injury, Facial paralysis, Synkinesis, Seizures https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/086cde11-e53f-419b-972f-2a900c9422ce/ICU_16X9.jpg unfixed media productions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/81669be0-3b03-48e7-90be-fb3596fc380b/OPT3sm.jpg unfixed media productions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/f68af630-b074-4e4e-a3d0-b25ccd6b8473/UNBOUND_sm.jpg unfixed media productions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/4aefb560-e046-49fa-af0a-51851cf52bc5/UF_PODCAST_COVER_1920%3A1080.jpg unfixed media productions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/9f23f6c6-2b1d-4e42-9f93-79bd7d6c9df7/UPDATED_LOGO_PAGE-02.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/64b9ce2a-21c3-40ef-bf15-4857784c5926/unfixed_hero_bannert.jpg unfixed media productions https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/3b3bd51a-b02d-42e0-852b-acb13ecaf3a4/UF_HB_COVER_ANGLE_SM.png unfixed media productions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/podcast daily 0.75 2021-01-30 https://unfixedmedia.com/podcast/episode-14-bless-the-beasts monthly 0.5 2021-06-15 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1623256552086-3RGLNJW3RIOB5R2OLTM5/Social_JenMorgan.jpg Podcast - 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Episode 6: The Curing - Coping Continuum https://unfixedmedia.com/podcast/episode-5-athletes-and-adversity monthly 0.5 2021-04-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1611966128729-CI43DUKU3R2ATC52OIT1/Social_SusanTodd.jpg Podcast - Episode 5: Athletes and Adversity https://unfixedmedia.com/podcast/episode-4-strength-in-sharing-6m2hr monthly 0.5 2021-04-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1609953551115-HZ2ADK3GWYV4RIJK9RFM/Social_AnnieRachelle.jpg Podcast - Episode 4: Strength in Sharing with Dr. Annie Brewster and Rachelle Alford https://unfixedmedia.com/podcast/episode-3-humor-and-healing monthly 0.5 2021-04-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1608490197597-4QSN547DOL6VDZP0VP88/Social_JoelJeneye.jpg Podcast - Episode 3: Humor and Healing with Dr. Joel Goodman and Jeneye Abele https://unfixedmedia.com/podcast/episode-2-sustaining-ourselves-sustaining-others monthly 0.5 2021-04-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1607641343439-0O99LQ07D2IOO1GSGFG2/Social_ElissaElizabeth.jpg Podcast - Episode 2: Sustaining Ourselves, Sustaining Others with Elissa Altman and Elizabeth Jameson https://unfixedmedia.com/podcast/episode-1-intro-to-the-unfixed-community-with-kimberly-warner-amp-martel-catalano monthly 0.5 2021-04-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1606841305775-8D5JU4WKN2FJZKU2B2FP/Social_KimMartel.jpg Podcast - Episode 1: Intro to the Unfixed Community with Kimberly Warner & Martel Catalano https://unfixedmedia.com/ms-confidential daily 0.75 2024-09-04 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1623442814671-DG2VGGA3MKKH1445NX9I/White_background.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1623443060051-MWYM07PLUR60ATPLSPLW/White_background.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648749016390-YV21TUCPRYTJB7EE420V/White_background.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1649003240457-DVP3KZEVAZRLNKTH2OZE/teal.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/fccf2bc5-4df0-46f1-9eb5-4896380d09a8/MSCbright.png MS Confidential - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1620667414397-5TB0FWNJNKT0MLGXVQPM/Elizabeth_MSConfidentialsm400.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/05eeb849-a910-4034-a672-6d477507f6c9/Kyle-headshot_new.jpg MS Confidential https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1620671110978-4DZEE2JTN5H6BF4ZBKFT/Annie_Herosm400.jpg MS Confidential - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/liferebalancedchronicles daily 0.75 2024-09-04 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1621280184816-L3LSAP9HNAAYZYF7ACGM/White_background.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1621280480483-BADX61RJ8X3HELFY3RLC/White_background.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648748407365-NF9TSARGAGLSQ80ZHG7K/White_background.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648748587297-3DOZK7WHI1HPZ12KLN2J/White_background.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648754222330-3LNH0WADLNC8RCRE1DUO/White_background.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648757834677-S593QRBA8XGWC5T66X7O/teal.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648757924315-9919S7WPZVT4I7J1BFNT/teal.jpg Life Rebalanced Chronicles https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/ce1855a8-4a54-4310-9856-bddd2542d6c4/kim-and-sun.jpg Life Rebalanced Chronicles - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616182785713-BDFCM3YK65GC0DFXH7QK/Nicolle_BW.jpg Life Rebalanced Chronicles - Nicolle - Meniere’s Disease, SSHL and Hyperacusis Nicolle Cure is a Colombian-American artist based in Miami, Florida. Her signature series, The Colors of Sound, is a collection of fluid abstract paintings that explore the relationship between sound and life – inspired by her Sudden Unilateral Hearing Loss (SSHL) experience. In 2020, she released the continuation of this collection with a new body of work titled Supernova. Through her new paintings, she continues to illustrate her experience with sound and color now in contrast with how sound occurs in cosmic elements like Pulsars and Supernovas. Nicolle has partnered with the Hearing Health Foundation and Vestibular Disorders Organization (VeDA) for several years, where she donates her time and art to benefit their fundraising initiatives. As a result of her work raising awareness about hearing loss and invisible disabilities, she was awarded the Leadership Scholarship by Americans for the Arts in 2018. Nicolle's art has been showcased at Art Basel Miami, Beaux Arts Festival, and other art fairs in South Korea, China, and Colombia. She has been featured in several magazines, blogs, and other publications focused on fine art and hearing health. In 2016, several of her paintings were included in the "Imagen y Palabra," an art book highlighting contemporary Latin American artists based in the United States. Her work is available at West Elm, Showfields, PxP Contemporary, and other galleries and platforms. Nicolle earned a Bachelor's Degree in Advertising from the University of Florida and an Associate in Arts in Computer Arts Animation. She also holds academic certificates from the Sotheby's Institute of Art. IG: @nicollecure_art Facebook: https://www.facebook.com/nicolle.cure.artist https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616178404045-BJC84I91IIFR4AIH813G/Johan_bw.jpg Life Rebalanced Chronicles - Johan - Vestibular Migraine, PPPD Johan also known as “The Chappiness Guy” is a extroverted, loving , family guy. When Johan turned 33 years of age his world was turned upside down by a diagnosis of Vestibular Migraines and PPPD. At 33 years of age Johan felt like he was on top of the world, successful career, just bought a house, planning his wedding to the love of his life when suddenly one night (April 18/ 2019) turned out to be anything but an ordinary night. It first began with symptoms of head pressure, ear fullness, neck pain, strong dizziness, and loss of balance as well as visual disturbances such as lights, spots , vibrating eyes, light sensitivity and lack of focus. After many Doctor appointments with specialists and after many different tests, the diagnosis of Vestibular Migraines and PPPD was reached. Now almost 2 years later, Johan is learning to thrive and live his life with some much needed adjustments such as diet changes, exercise, vestibular rehab therapy , supplements and medication. Johan started a youtube channel (Find your Chappiness) and started hosting a show called Vestibular TALKS. Vestibular TALKS currently has over 50 episodes with a variety of guests that have been kind and brave enough to open up and share their journeys, raise awareness and inspire others living with Chronic illness such as Meniere’s Disease, Vestibular Migraines, MDDS, PPPD, MS, Chronic migraines and more. Johan is a VeDA ambassador and he hopes to continue raising awareness and providing a positive outlet for many others to share their journeys and connect with a wonderful community of Vestibular Warriors. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616617402946-2KOGMDVFUJD44ILS4J53/Lynn_BW.jpg Life Rebalanced Chronicles - Lynn - Autoimmune Inner Ear Disease, Bilateral Vestibular Hypofunction My life became unbalanced Thanksgiving 2015. I had been feeling off and out of blue woke up with imbalance and loud tinnitus in my right ear. As days past, it just got worse. 5 months & 4 doctors later I was diagnosed with Autoimmune Inner Ear Disease: Cogan’s Syndrome. My symptoms include: Bilateral Vestibular Hypofunction, SSN Hearing Loss (Bilateral), Osciliopsia, and imbalance. If I were given the correct diagnosis in the beginning, it is possible I could’ve saved my hearing. This disease has robbed me of my hearing, my career as an H.S. Biology teacher, my ability to walk, to drive, so many things. But I refuse to let it rob me of my joy and quality of life. That is why I am a VeDA Ambassador to spread awareness, educate, and to advocate on behalf of patients like myself so that a misdiagnosis can be prevented. I currently help administrated the Autoimmune Inner-Ear Disorder Facebook Group https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616685759210-JWA0DV9IVB3JEW4YLY71/Rishi_bw.jpg Life Rebalanced Chronicles - Rishi - Vestibular Neuritis Hi I am Rishi from New York. I am originally from India and I came to the USA 6 years ago to pursue my Masters degree. Currently I work in American Express as a Senior Product Manager. I like to live an active lifestyle and I love meeting new people. Making new friends is my second nature and I am super excited about getting on this journey. My motto is, life should be large not long. In March 2020 I was sick with the flu, when suddenly serious spinning hit me for few seconds. After that it was all downhill. Lights bothered me and I had constant imbalance complimented by anxiety and panic disorder. After months of doctor visits I was diagnosed with Vestibular Neuritis with hypofunction in my right ear. Now after months of VRT and yoga I am on my road to recovery. I do have off days but I am in a much better space. I am here for my fellow vestibular issue sufferers to guide them and provide necessary tips and tricks to manage these symptoms since it doesn’t have any specific guidebook or medication. Instagram Personal account : @Riishii.b Instagram Vestibular account : @vestibularbalanced https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616178423656-P7IVT0PB2EGUEPU36B2M/sandy_bw.jpg Life Rebalanced Chronicles - Sandy - Mal de Débarquement Syndrome, Vestibular Migraine Hi! My name is Sandy. I am the co-founder of Solutions for a Better Day, a speech-language pathologist and writer. My “voyage” with MdDS and VM started in 2018 on a trip to Europe. After a few airplane, car, and boat rides, my whole world was constantly in motion on land. I felt and saw rocking, bobbing, and swaying, as if I was still on a boat. I’ve been trying to get my land legs back ever since! Since then, my coping strategies and skills have improved, and so have my symptoms– very, very slowly. I’m hopeful I’ll reach remission someday, but until then I’m trying to ride the waves of MdDS and live my best boat life despite the dizziness! I decided to become a VeDA Ambassador to raise awareness and help other keep living life to the fullest with MdDS. I chonical my struggles and triumphs on instagram and in my blog. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616515583457-RM7WQXJ72NFRG3FNGV2A/steve_bw.jpg Life Rebalanced Chronicles - Steve - Meniere's Disease In the month of September, 2020, Steve Schwier rode an e-bike 1,400 hundred miles from Denver Colorado to Columbus Ohio to bring awareness to Meniere’s Disease, a chronic and debilitating condition from which he and approx. 600,000 Americans suffer. His difficult and grueling ride is chronicled in his memoir “On the Vertigo: One Sick Man’s Journey to Make a Difference,” which is now available for purchase on Amazon. Diagnosed in 2013, Schwier has been able to do little in that time but stay on his couch and manage his symptoms. But one year ago, Schwier decided to get up and ride his bike across America to be the voice of a suffering, silent minority. Despite the horrendous nature of the disease, Schwier tells his story with humor, grace and heartfelt reflection. His ride raised more than $10,000, all of which went to Meniere’s Disease awareness and research. IG: @onthevertigo FB: Meniere’s: On the Vertigo https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616525222607-4KANED8OV5FNQP8EE67X/p06hykx2.jpg Life Rebalanced Chronicles - Rupal - Vestibulopathy with Visual Preference As an experienced Broadcast Journalist who has worked for the BBC for 29 years, Rupal has produced and presented various programmes at BBC Leicester, BBC Asian Network and East Midlands Today. Born in Uganda and arrived in the UK when she was only two, Rupal’s documented journey back to her country of birth won Rupal an a Race in the Media award in 2005. She has continued to present various programmes on BBC Radio Leicester and met and interviewed many celebrities in her time. Around 11 years ago she was diagnosed with Vestibulopathy with Visual Preference. Damage to her inner ear which has affected her balance significantly. She was able to continue work after an absence of around 8 months with the help of the Leicester Balance Clinic and regular vestibular physiotherapy . The condition worsened again in early 2015 which led to her being off work for over two and half years. Rupal is Head of Communications with Life on the Level, a support group and resource for vestibular patients. She rarely uses this title though, as her warm and winning personalty is all she needs for her natural command of any situation. Rupal is also a Life On The Level “Balance Buddy” – helping our members with her own experiences, tips and support. She works as a freelancer and writes about how the condition has affected her life and hopes to help others through her blog and youtube channel: https://rupalrajani.blogspot.com/ https://www.youtube.com/channel/UCa19opf6Rt8aBGc8vKbrLBQ/featured https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616617495410-AOLPUWIPBWXHBM50C7DU/AliciaWolf_BW.jpg Life Rebalanced Chronicles - Alicia - Vestibular Migraine Hey y’all! I’m Alicia and I was diagnosed with vestibular migraine (MAV) in 2017, a diagnosis that changed my life. I went from being a fun-loving, world-traveling 30 year old to never leaving my house. I was newly married and thought my life was over. It took a few months for me to find the right neuro-otologist and the right treatment plan for me, but in the past 2 years I’ve become stronger than I could have ever imagined. Through the Heal Your Headache diet, vestibular therapy (VRT), key supplements, and ballet, I’m back to living life to it’s fullest. I started The Dizzy Cook, a diet and lifestyle website for those with migraine and vestibular disorders, as well as their family and friends. I share the recipes and tips that have helped me get my life back in the hope that it will help others in some small (or BIG) way! Website • Facebook https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1616517097106-EEF5OIMG1NF791PJEO4P/IMG_9213.jpg Life Rebalanced Chronicles - David - Stroke-related Vestibular Disorder My vestibular disorder was caused by a stroke that knocked out the part of the brain that controls balance. During my recovery I found myself struggling with constant dizziness and balance problems. I didn’t really know where to turn, until I found VeDA. They helped me understand my disorder with all the information and research they have done through the years. I knew at that time I had to give back, and focused all my energy on helping to educate the public so more could understand this disorder. The following quote sums up my entire mission. If we speak in one voice collectibility we can “Make a Difference.” David now facilitates the largest vestibular Facebook support group. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1621280100883-W56OLLV2BK77TV70XJJO/LRC_LOGO_STACKED.png Life Rebalanced Chronicles - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392948892-EXAQKF4OUHW8I1CYQN1Q/Emma.jpg Life Rebalanced Chronicles - Emma - Vestibular Migraine Emma is based in Sheffield in the UK and works as a yoga teacher and massage therapist. Her passion for yoga and holistic therapies started through supporting her own body when she was diagnosed with chronic vestibular migraine in 2018. Her journey with a vestibular disorder has been a difficult one and as a result she had to leave her job as a school teacher and change her lifestyle dramatically. She now works hard to manage her symptoms, which is a daily battle, but she is positive about her future and grateful for the unexpected new life path this condition has taken her on. Her goal is to share hope, inspiration and positivity with her story for those struggling with a vestibular disorder or chronic illness. She shares her yoga and wellness journey on Instagram: @emmaleighyoga https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392950797-4TC8IIJEHTT44SI1KRKB/Kevin.jpg Life Rebalanced Chronicles - Kevin - PPPD, Vestibular Migraine Kevin’s life changed completely in May of 2021, one month before his already planned resignation from his career as Head of Retail and Visitor Services with a cultural institution in San Antonio, Texas. He tendered his resignation after 6 years of nonstop travel, managing a team, writing budgets for two departments, and living with the physical and mental challenges of Ankylosing Spondylitis (Auto-Inflammatory Disease) and Classic migraines w/Aura. “In 6 years I’d never stopped to take a rest or recuperate from my AS diagnosis, which happened my 2nd year in management”. One evening he stepped out to get some fresh air and noticed lights were too bright, he was seeing double, his ears hurt, and he was dizzy. The next morning upon getting out of bed, Kevin collapsed to the floor. This wasn’t the first time he’d experienced dizziness or vision problems, but the first time the symptoms wouldn’t go away. Diagnosed with Vestibular Migraines and PPPD, Kevin is still adjusting to this new life with what he calls “one of Everything” 1 physical disease, 1 neurological disease , and recently diagnosed with Bipolar 1 disorder, 1 mental disease. He finds strength in sharing experiences with VEDA Ambassadors and others living the vestibular life. Instagram: @deeptexasfire210 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392949867-IWU9AOLF0K8TX6V5HZF7/Heather.jpg Life Rebalanced Chronicles - Heather - Meniere's Disease Heather began having 1-2 episodes of vertigo yearly in the late 1990s. In October 2016, she began having pressure and numbness on the right side of her head that radiated down the side of her face, along with tinnitus and body weakness. As her symptoms intensified, they were joined by vertigo that she experienced daily for nearly 6 months, along with hyperacusis, dizziness and a multitude of other symptoms. These symptoms forced her to take a leave of absence from her nursing career, step down from teaching fitness classes, withdraw from college and surrender her driver’s license. While attending numerous doctor’s appointments, trying to figure out what was happening to the body she no longer recognized, she spiraled into a deep depression. Finally came a diagnosis, then trials of medication until finding what worked for her. Through meditation, journaling, nutritional changes, vestibular rehab, yoga, learning to love herself again and making her family's dreams her driving force, she continues to learn how to live her best life despite the symptoms. In early 2022, Heather started the Meniere’s Muse podcast for Vestibular Warriors to share their personal journeys, in hopes that the power of connection will give hope and inspiration to others living with vestibular disorders. She believes together we find our strength by empowering each other to move forward in our journeys, by learning to lean on and support one another so no one feels alone. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392954521-73MABCMCAMHAW0D5HSTO/YannisBW.jpg Life Rebalanced Chronicles - Yannis - Mal de Débarquement Syndrome Yannis is a french vestibular patient. After a long-haul flight to Japan in September 2019 he encountered strange sensations that never left him - he eventually was diagnosed with Mal de debarquement syndrome (MDDS). Since there are no or few resources on vestibular disorders "dans la langue de Molière", he decided to create ADeV (the French VeDA). https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392951467-V2EK8L6BO1XHCJ6V4SAK/Marissa.jpg Life Rebalanced Chronicles - Marissa - PPPD, Vestibular Migraine Marissa’s journey with vestibular migraine and PPPD began 11 years ago. Little did she realize that her life would change forever. After a few years of a remission and then a return of the illness in 2018, she is now finding her purpose and joy through advocating for other vestibular patients and co-hosting a podcast called Finding Joy with Vestibular Migraine. @joyandmarissa https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392950086-IWM11TB16N2ITOQSHRVB/Joy.JPG Life Rebalanced Chronicles - Joy - Mal de Débarquement, Vestibular Migraine Joy’s nightmare began March 2018 after a week long family vacation on a cruise ship. After a week of being home, she knew something was wrong when her "land legs" didn't return and was beyond exhausted. She wasn't bouncing back fresh and rejuvenated from a week off the grind in the Caribbean as she had from prior cruises. As a healthcare provider she researched the possibilities and started making appointments with ENTs and neurologists. She had a list of working diagnoses for over one year and saw many specialists before she was able to get definitive answers. She was first diagnosed with MdDS. During the first year of having MdDS, an invisible disorder, life threw her multiple curve balls increasing stress which led to vestibular migraines, tinnitus, and hyperacusis. The MdDS symptoms wax and wane. She now falls somewhere in the MdDS/PPPD loop given the day, weather, and personal activities. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392948874-E8KWUWQKMGFH126U4AHT/Etta.jpg Life Rebalanced Chronicles - Etta - PPPD, Vestibular Migraine Etta first had bouts of spontaneous vertigo for a few years, nothing debilitating. But on January 5th, 2022, she collapsed in her home and was taken to the ER. They said she was fine. A few weeks later she was diagnosed with vestibular migraine and PPPD. She has never been the same since January 5th, having symptoms 24/7. She believes there is hope and will get her life back. Connecting with others in the community has saved her life. Etta’s Instagram https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392952050-89SAB9JUQSJF5BEO7IPT/Paul.jpg Life Rebalanced Chronicles - Paul - Vestibular Neuritis Paul holds a masters degree in Theological Studies from The Methodist Theological School and was employed in banking for 30 years. He was forced into early retirement in 2015 when he developed Vestibular Neuritis. He has also been a professional organist and music director for 30+ years and is currently the Senior Organist and Director of Music Ministries at Emanuel Lutheran Church in Marion, OH. Through his experiences living with Vestibular Neuritis, he decided to become a volunteer and advocate with the Vestibular Disorders Association (VeDA) and is co-chair of VeDA’s Patient Education Committee. In addition, he arranged and collaborated on recordings and concerts to raise funds and awareness for Delaware, OH area non-profits. Early in 2021 Paul tested positive for Covid. Post-infection he developed debilitating fatigue, chronic malaise, brain-fog and heightened vestibular challenges that temporarily eased after contracting Covid for a second time in late 2021. Paul is able to find comfort and relief from his symptoms and challenges through his music. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1673392952732-138W4ELMHAN9LTCRHEN6/Rochelle.jpg Life Rebalanced Chronicles - Rochelle - BPPV, Vestibular Migraine Rochelle first experienced vertigo at the tender age of 10 years old. Vertigo would come and go sporadically throughout her teenage years, getting progressively worse as she entered her early 20's. That is when she finally decided to seek a doctor's help. The first specialist she saw diagnosed her with BPPV, which she managed with Epley Maneuvers every few months to get rid of the violent vertigo attacks. The constant unbalance she felt between attacks continued though. She saw multiple additional specialists who could not figure out what was affecting her balance. Finally, Rochelle saw a vestibular physical therapist who diagnosed her with Vestibular Migraines. He helped educate her about doing a migraine elimination diet, and taught her vestibular therapy exercises that could help strengthen her balance. She progressively got better, and now has very few vertigo attacks. Her healing journey and learning more about vestibular physical therapy inspired her to go into the field herself. Rochelle went back to school and will complete her Doctorate of Physical Therapy in 2026. She looks forward to helping fellow vestibular patients through her expertise and her ability to relate to their symptoms directly. In addition to being in school, Rochelle is also a mom to 2 beautiful children, Rosetta and Desmond. She and her husband Matt have been married for 11 years and live in beautiful Baltimore city. https://unfixedmedia.com/whywematter daily 0.75 2025-04-29 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1636231333798-CVD00ZVOG3IB6ZTIR8YG/OPT3.jpg WHY WE MATTER https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648748088366-EQZ4DRVRUUDXIJ9L5V3Y/White_background.jpg WHY WE MATTER https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648758984371-LODIXBEZLJW76OUSTV7C/teal.jpg WHY WE MATTER https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/4318e51f-3d2c-4b05-a4ae-5d8eb08ae6ed/OPT3.jpg WHY WE MATTER - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/unfixed-focus daily 0.75 2022-12-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648748760362-35GCNPIAID9599YDS8JB/White_background.jpg Unfixed Focus https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648748787147-9DVQ78XGA7L29RTXCMXN/White_background.jpg Unfixed Focus https://unfixedmedia.com/docuseries daily 0.75 2024-09-04 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648758361495-7ABAED2P9NFPRKAI3A2L/teal.jpg Docuseries https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/7a7b7abe-b29b-4e1b-941d-51f0d6ca1e93/Screen+Shot+2021-11-28+at+9.51.53+AM.png Docuseries - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/long-haul-voices daily 0.75 2022-06-27 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648745736431-XO7VLZSOP3NGBIRJ7PZV/White_background.jpg Long Haul Voices https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648758022695-3H0Z5UDZ5VSWPEQRA34P/teal.jpg Long Haul Voices https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/93ddcbb4-439c-4edd-86c3-8a5e1aff6fed/LHV_HORZ.png Long Haul Voices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/ed64b6c1-a81a-4a1b-b3c1-943ed9d174dd/Solve+ME+Logo+2021%4072.png Long Haul Voices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647535792975-60B2UUSX5REJETLAA8PT/SarahRamey1x1.jpg Long Haul Voices - Sarah Ramey - Author/Musician (ME/CFS, CRPS, POTS) Sarah Ramey is a writer and musician (known as Wolf Larsen) living in Tucson, Arizona. She received an MFA in creative nonfiction writing from Columbia University, and was a writer for President Obama’s 2008 campaign. She is the recipient of a 2018 Whiting grant for nonfiction, and has been featured in The Paris Review, NPR, The Atlantic, The Washington Post, Ms. Magazine, Salon, Refinery 29, LitHub, and The Washingtonian. The Lady’s Handbook for Her Mysterious Illness was an Amazon Editor’s Pick, it was a starred selection for Publisher’s Weekly, Kirkus Reviews, and Booklist, and it was chosen as one of the best books of 2020 by BookPage. Sarah has been living with serious chronic pain and illness for seventeen years, and The Lady’s Handbook for Her Mysterious Illness is her first book. Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647550780569-EYDUYREVSWX19L5BA2K0/Bilal_Qizibash1x1.jpg Long Haul Voices - Bilal Qizibash - CEO (Long Covid, Autism) Bilal Qizilbash holds an MS in medical sciences and is the CEO of EasyKale Labs. He has presented lectures on leadership, innovation, and his team's cancer breakthroughs at numerous conferences, most notably at the Global Health & Innovation Conference at Yale University. He was born in Queens, New York to awesome parents. For over thirty years he has been constantly learning and analyzing the world around him. His curious nature is at the very core of everything he endeavors to do. When he is not in the lab testing groundbreaking theories or lecturing, he ponders complexities of life and nuances of human nature. Bilal loves to improve upon matters involving life from the cellular to the global level. He is heading a pioneering research protocol studying the effect of kale on malignant cancer cells. He has a strong vision of good health and humanity's progression towards peace, which is readily evident in his books. During various stages of his career, Bilal has consistently demonstrated and honed in his leadership abilities. As a child, he won the prestigious Attorney General's Triple "C" award. This trend continued on into adulthood with the Unsung Hero and the 2016 Ansar Awards. He approaches all that he does with ingenuity, imagination, and sincerity. Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647280466391-6RUORRSG31OIGT7MXA4K/CynthiaAdinig_headshot1x1.jpeg Long Haul Voices - Cynthia Adinig - Patient Advocate & Equity Policy Advisor (Long Covid, MCAS, EDS, POTS) I am a 36 year old marketing specialist turned Long Covid Advocate & Equity policy advisor from Northern Virginia. Recovering from a March 2020 mild COVID-19 infection that lead to disability. Due to my uniquely severe Long Covid symptoms, I have had to seek care at local emergency rooms over 30 times. After being threatened with arrest by hospital staff for seeking medical help during an episode of dangerously low oxygen and high heart rate, I became an advocate so that others who followed could receive proper care, which led to my role in COVID-19 Long Haulers Act. I am now working on a number of Long Covid and ME/CFS projects, including an upcoming Massachusetts Department of Public Health panel titled “Invisible Disabilities: Long Covid and Other Post-Infectious Illnesses." I also am a Long Covid Alliance core steering member and board member of SolveME. Recently, I was featured in TIME magazine alongside other well known medical equity advocates; Wilhelmina Jenkins, Ashanti Daniel, and Chimére Smith. Along with a profile of my Long Covid journey in the Washington Post. I discuss the overt and implicit bias I have faced as a Black woman seeking life-saving healthcare for Long Covid. Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647555533809-JCUR4B1L6DO8U6M1VPH2/NinaMuirhead_1x1.jpg Long Haul Voices - Dr. Nina Muirhead - Dermatology Surgeon (ME/CFS) Dr. Nina Muirhead is a Dermatology Surgeon at the Buckinghamshire Healthcare NHS Trust and is a founding contributor to Doctors with M.E. Since becoming ill with M.E. in September 2016, she has done much to raise awareness of M.E., speaking and writing in various forums in the UK and abroad, including the Cambridge GP Society, the Canadian Institutes of Health Research, the Royal College of Physicians and the British Medical Journal. Dr. Muirhead is Chair of the CFS/ME Research Collaborative (CMRC) Medical Education Working Group and a member of the Forward ME group of UK ME charities. She is also author of the free ME/CFS online training module on Study PRN, which carries 1 CPD credit. Dr. Muirhead is active in research and education, and supervises several medical students on their projects on ME/CFS. Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647280549004-ZK4R1P09I6HN6FK2E9EK/anthiny+l+komaroff_1x1.jpg Long Haul Voices - Dr. Anthony Komaroff - Professor of Medicine Harvard Medical School Dr. Anthony L. Komaroff is the Steven P. Simcox/Patrick A. Clifford/James H. Higby Professor of Medicine at Harvard Medical School, senior physician at Brigham and Women’s Hospital in Boston, and editor in chief of the Harvard Health Letter. He was director of the division of general medicine and primary care at Brigham and Women’s Hospital for 15 years, and is the founding editor of Journal Watch, a summary medical information newsletter for physicians published by the Massachusetts Medical Society/New England Journal of Medicine. He is also a member of Solve’s Research Advisory Council and an ME and Long Covid expert. Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1646695058561-QK3UVQ0R6PHKSB2V150D/Lili_Lim_1x1.jpg Long Haul Voices - Lili Lim - Actor, Comedian (ME/CFS) Hi! I'm Lili, an actor, creator, and comedian. I'm an LA native (go Lakers!), and I love learning languages and sword-fighting-- I speak Spanish, some Mandarin, and a bit of Klingon. I'm a nerd-jock hybrid, for sure. I love the intersection of media and storytelling so much that I wrote a Master's thesis on it-- "Entertainment-Education and Narrative Persuasion in the Context of the Culture Cycle and Communication Theories." (My advisor called it "an excellent paper." I could hardly get a word in edgewise.) If that title didn't hook you, tldr: I believe in media and art as forms for making change in the world with stories. (And the academic literature supports that!). I also wrote a paper on the complexities of comedy in Family Guy. During my last year at Stanford University, I began to battle ME/CFS and this year was selected to join the Solve M.E. Community Advisory Council, getting a chance to volunteer with one of the organizations on the forefront of creating change for our community. Since returning to LA, I fell in love with the other parts of production as well. Currently, I am working on a sci-fi dramedy webseries, developed with the talented Lillian Bornstein, Keep in Touch (2021). Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1646695082738-7A2DCI7WPE8H1XAZG3SO/Amy_Proal_1x1.jpg Long Haul Voices - Dr. Amy Proal - Microbiologist & Viral Science Advisor Dr. Proal is a microbiologist who studies the molecular mechanisms by which bacterial, fungal and viral pathogens dysregulate human gene expression, immunity and metabolism. Her work further examines how dysbiosis of the human microbiome and/or the human virome can contribute to chronic inflammatory disease processes. As a member of the research team at Autoimmunity Research Foundation, she has authored papers and written book chapters for organizations like the J.Craig Venter Institute and The Autoimmunity Network, and lectured at the NIH and numerous USA/international conferences. Proal graduated from Georgetown University in 2005 with a degree in biology. In 2012, she obtained a PhD in microbiology from Murdoch University in Australia. Her graduate thesis focused on “Autoimmune disease re-examined in light of metagenomic concepts.” Twitter https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647276192526-FN6MQAMFBMQKPD3O9UVT/Soh-YeonLee1x1.jpg Long Haul Voices - Soh-Yeon Lee - Senior Program Analyst (ME/CFS) Soh-Yeon (she/they) began experiencing post-viral illness symptoms around 2003. She was formally diagnosed with Myalgic Encephalomyelitis (ME) in 2018. She's been dedicating her free time to advocacy work for the ME/CFS and the Long COVID community. She's a volunteer Community Advisory Council member for Solve ME Initiative and Storytelling & Media Awareness working group co-lead for Long-COVID Alliance. Instagram Podcast interview https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1647550959268-3GGP20MGJ6ABFUHIR6LG/PaulBurnside1x1.jpg Long Haul Voices - Paul Burnside - Retired Banker, Organist (Long Covid, Vestibular Neuritis) Paul holds a masters degree in Theological Studies from The Methodist Theological School and was employed in banking for 30 years. He was forced into early retirement in 2015 when he developed Vestibular Neuritis. He has also been a professional organist and music director for 30+ years and is currently the Senior Organist and Director of Music Ministries at Emanuel Lutheran Church in Marion, OH. Through his experiences living with Vestibular Neuritis, he decided to become a volunteer and advocate with the Vestibular Disorders Association (VeDA) and is co-chair of VeDA’s Patient Education Committee. In addition, he arranged and collaborated on recordings and concerts to raise funds and awareness for Delaware, OH area non-profits. Early in 2021 Paul tested positive for Covid. Post-infection he developed debilitating fatigue, chronic malaise, brain-fog and heightened vestibular challenges that temporarily eased after contracting Covid for a second time in late 2021. Paul is able to find comfort and relief from his symptoms and challenges through his music. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1651693250509-3L5Y9GG0C2TM7HQR6FDE/Emily_headshot.jpg Long Haul Voices - Emily Taylor - VP Advocacy and Engagement at Solve ME Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999. https://unfixedmedia.com/icu daily 0.75 2025-07-11 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/99f413e5-e038-4a30-804b-b95d53ec3967/ICU_16X9.jpg ICU: Real Health Professionals, Real Patients, Real Conversations - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/liberationofbeing daily 0.75 2024-09-04 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1685732283796-5LPDYCK8M4VAPXXRJGXS/teal.jpg Liberation of Being https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/22f006c6-03c0-431d-be6e-736c0f8a09eb/COVER_TRY_5.jpg Liberation of Being - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/unfixed-mind daily 0.75 2024-02-22 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1671564670572-YSITAW3Y1L3L1X4SHZYW/Unfixed+Mind+yellow.jpg Unfixed Mind https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1674073602128-402QMFOFB23Q9TTGHBY3/Unfixed+Mind+yellow.jpg Unfixed Mind https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/79ef1b45-56aa-4598-832c-818fd8021208/UM.jpg Unfixed Mind - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1674072047762-J19M4IYN498VJ87D7S2U/Dior_BW500.jpg Unfixed Mind - Dior - PTSD, Dysthymia, ADHD, Borderline Personality Disorder Dior Vargas, MPH, is a mental health activist with over ten years of experience in advocacy. She works with universities and corporations to discuss self-care advocacy, wellness accessibility, and diversity within mental health. She is the creator of the People of Color and Mental Illness Photo Project, a response to the invisibility of BIPOC in the media representation of mental illness. She is also the editor of The Color of My Mind, a book based on the photo project. Dior has received numerous awards, including the White House Champion of Change for Disability Advocacy Across Generations under the Obama Administration. Dior delivers speaking engagements across the country, and her work and insight have been covered in media outlets such as The New York Times. Dior has a BA in the Study of Women and Gender from Smith College and an MPH from New York University. She was born and raised in New York City and still lives there. Website Instagram Twitter LInkedIn https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1671565389504-49SNS4C6XRPEK9O2AAF7/Rikki_BW.jpg Unfixed Mind - Rikki - Schizophrenia, Depression, and Anxiety Rikky was diagnosed with Major Depression, Anxiety and Schizophrenia when he was 15. He understands these conditions may be with him for life, has high and low days, but chooses to not let it define who he is or is becoming. He believes there is always a light at the end of a tunnel. Rikky works for a non-profit organization, NAMI, that spreads awareness about mental health and has the privilege of sharing his personal stories and keeping the community informed of the resources the organization provides. He is also currently a student at Texas State University where he is working on his BA in Psychology with the goal to give back to the city that made him and help the PoC and LGBTQ+ communities. When Rikky isn’t working or studying, he enjoys writing, playing video or board games, hanging out with family and friends, playing football, listening to music, and working out. All these activities, and in no particular hierarchy or preference, help him cope with his diagnoses and live a full life. Instagram https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1674073077100-UYR61O12FRUKMYKF8E75/Cissy_BW_500.jpg Unfixed Mind - Cissy - PTSD, Ovarian Cancer Christine Cissy White (1966-2023) was a writer and health advocate who believed in the healing power of expressive writing and truth-telling. She blogged at www.healwritenow.com and her essays, interviews, and reporting about living with post-traumatic stress and ovarian cancer have been published in The New England Journal of Medicine / Evidence, Ms. Magazine, the Boston Globe, the Patient Empowerment Network, and ACEs Too High. Her survivor-led advocacy was highlighted in The Atlantic, The Mighty, and Huffington Post and she appeared on PBS NewsHour as well. Cissy is moved into hospice March of 2023 at the beginning of production. We were fortunate she wanted to share her experiences with us before her passing on April 2, 2023. Twitter LinkedIn Facebook Instagram https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1671565379646-PHBCPB9OV2HLL58WH7XT/Kyle_bio500.jpg Unfixed Mind - Kyle - Major Depressive Disorder & Primary Progressive Multiple Sclerosis Kyle Kranich is 32 years old and has been living with major depressive disorder since he was 16 and battling Primary Progressive Multiple Sclerosis since age 20. Prior to his MS diagnosis, Kyle was an active athlete that played basketball, surfed, and ran half marathons. He is currently a student at Colorado State University Global pursuing a graduate degree in accounting with a goal to use this knowledge to start businesses of his own. His current business endeavor involves cultivating gourmet and medicinal mushrooms, which combines his passion for health and wellness and advocating for this possibility in others. Living in a body/mind that has thrown him many curve balls at a young age, he’s committed to “owning his minutes.” Instagram Facebook https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1674073455604-F3W80NRRFBYJFV284QNK/AvaBW500.jpg Unfixed Mind - Ava - Substance Abuse Disorder, Borderline Personality Disorder, OCD, PTSD, Depression/Anxiety, Suicide Attempts Ava Grieco is a 24 year old transgender musician and artist from Boston, MA. Ava is a recent graduate from Berklee College of Music with a double major in Song Writing and Music Production & Engineering, and a double minor in Philosophy and Music Technology. Ava is an avid speaker on mental health and living life as a sober alcoholic/addict. Ava has never been shy when it comes to sharing his story, because he knew when he was young, it would have made a difference if he had heard his story from someone else. Ava believes in honesty, even when it comes to the toughest questions, because sometimes the most difficult answer is the one someone else carries with them for a lifetime. Instagram https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1671565370190-IV3AJRTL537GOW8AH3VV/Jacob_bw500I.jpg Unfixed Mind - Jacob - Depression, Anxiety Despite living with clinical depression and anxiety, Jacob Luna is an authority on cybersecurity and technology innovation, focusing on diversity and inclusion. Mr. Luna has served as a change agent and a trusted IT and security advisor for over two decades. He serves as board chair for the DFW chapter of NextGen Cyber Talent, a national non-profit aimed at educating underprivileged, underserved talent and increasing diversity in cybersecurity. He has served ADP for 14 years in unique technology and security leadership roles. Jacob shares his story of living with anxiety and depression brought about by the covid pandemic to bring awareness to the imperative of prioritizing our mental health, specifically hoping to reach others that may be suffering alone. LinkedIn https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/56024ee3-5a54-4852-8d9a-9b86bc89842c/HealtheVoices_logo.jpg Unfixed Mind - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/3a9b2dcb-2fff-4583-a014-e51c2a67d399/SCDAO-logo-neutral%2B%281%29h.png Unfixed Mind - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/unfixed-memoir daily 0.75 2026-02-03 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1683564621993-9O6ZRXNC925IZCCUPEF0/teal.jpg Unfixed memoir https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1696977180824-Y5NM5DSORM2XCK5WD5OV/IMG_5453.jpg Unfixed memoir https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1736705635816-G6RNV5ZPHCMJCRU3MEDI/teal.jpg Unfixed memoir https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/3bb65c8b-f019-4fe0-a265-0f67d054f190/UF_HB_COVER_ANGLE_SM.png Unfixed memoir - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/fe7db3c0-334a-4eef-8a64-0f56d0eadc7d/PW.jpg Unfixed memoir - Make it stand out Publisher’s Weekly Editors Pick https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/0fd4bcc8-90bf-4ac5-8772-50c7272460be/kirkus.jpg Unfixed memoir - Make it stand out Kirkus Review: GET IT https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/bfb8c326-41f6-4d96-8223-b7d9c5767df7/Screen+Shot+2024-01-15+at+8.57.12+AM.png Unfixed memoir - Make it stand out Family Secrets podcast https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/86e5f753-9d73-4119-a630-0d675d904b34/ab6765630000ba8a22a66af65bce62b704b99038.jpeg Unfixed memoir - Make it stand out The Rise Podcast https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/572fb95f-9e24-4cb6-8296-27b73dd17419/severence.jpg Unfixed memoir - Make it stand out Severance Magazine review https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/3e261ea1-0399-4d82-bb95-83a415b00fca/DNASurprises.jpg Unfixed memoir - Make it stand out DNA Surprises podcast https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/56756fd5-89de-4bbe-9a50-2825e42b8dda/cropped-mandys.jpg Unfixed memoir - Make it stand out Mandy’s Book Nook review https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/267ce786-dd8b-419e-9c95-2670ace04c76/ORArtsWatch.jpg Unfixed memoir - Make it stand out Oregon Arts Watch https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/4ff1951b-a3f3-463f-a078-bf0a812fd30d/KOINCONVO.jpg Unfixed memoir - Make it stand out ABC KOIN Conversations feature https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/89c1cf40-23bc-4dbe-8c67-0aac1d156af8/1859.jpg Unfixed memoir - Make it stand out 1859 Magazine feature https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/c6951f50-0f8b-408f-afbf-cf9251ffec58/AMNW.jpg Unfixed memoir - Make it stand out KATU ABC News feature https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/ffdbdc7a-bb19-41ba-8c58-42a58ac30d6c/Podcast+Square+Thumbnail+Gfx+%2885%29.png Unfixed memoir - Make it stand out Holistically Speaking podcast https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/4af810ce-11fd-48b8-b03e-73ac272ebf9e/HSC_e.jpg Unfixed memoir - Make it stand out Health Story Collaborative feature https://unfixedmedia.com/unfixed-unsung daily 0.75 2025-07-11 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1729101281331-KXRZE9BL5GXHJSNRA4ZP/UNSUNG_UNFIXED.jpg Unsung https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1738086151082-KQM59SHAT1HVUSU7KZIH/Unsung_orange.jpg Unsung https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/f44dd8ed-b399-4823-aa9b-ccb2e650f0eb/UNSUNG_OLD_1920_1080.jpg Unsung - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/867653d5-b1da-4664-8a32-e4f17831c0ba/laurel-2025-winner-black.png Unsung - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/b6f8cf0c-bb0d-4e4a-a057-1ddee91d509c/Antmen_BW.jpg Unsung - Antmen antmen pimentel mendoza (he, she) is the author of the chapbook MY BOYFRIEND APOCALYPSE (Nomadic Press, 2023; reprinted by Black Lawrence Press). antmen writes, works at the Multicultural Community Center at UC Berkeley, and studies at the Rainier Writing Workshop at Pacific Lutheran University. antmen lives in Oakland and is online as @antmenismagic and at antmenpm.com. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/216e5d88-fe68-43c9-bb2d-3cbe7db8ed20/Gail_BW.jpg Unsung - Gail Gail Marlene Schwartz is a dual citizen, a queer mom, and a newbie fiber artist. Her adult novel, Falling Through the Night (Demeter Press), won the National Indie Excellence Award for LGBTQ fiction and was a finalist for an Independent Publishers of New England book award. Other titles include the middle grade novel, My Sister’s Girlfriend, a picture book, The Loudest Bark (both from Rebel Mountain Press), and a chapter book, Clementine in Quarantine (Facile a lire). She co-edited a collection of essays, Boyhood Reimagined: Stories of Queer Moms Parenting Sons (Motina Books), which will drop on June 1st 2025. She is a founding member of the magazine, Hotch Potch Literature and Art, and hosts the Substack Writers in Relationship. Gail lives and writes in Ottawa Ontario with her partner, visual artist Erin Needham, and their occasional roommate Alexi, who is 15. Check out her website for more info and find her on Facebook, Instagram, Bluesky, and LinkedIn. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1772f74d-fd2a-44a5-bc51-bc023c1a9aef/Rys2.jpg Unsung - Aris Aris Hearth is constantly changing. He was born and raised in Western Pennsylvania, on land whose original caretakers include the Monongahela and Osage people. His family vacationed deep in the Appalachian woods every summer during his childhood, where he discovered his own love and connections to the land. He can’t imagine ever being apart from the mountains he calls home. Aris has considered himself a writer since the first essay he was assigned in fifth grade. He wrote about his grandma being his hero for following her intuition in a way that ultimately saved him and his younger sibling from harm. A deep intuition runs in his family and he has spent the past four and a half years working to hone his own. This has involved much personal and generational healing, which he considers his life’s work and calling. You can learn more about Aris’s journey through his Substack publication, A Perspective of Leaves, where he reflects on his discoveries and affirmations through story-telling and poetry. His goal is to bring people closer together through writing and to offer a unique perspective. His offerings there are one way he honors himself and his community. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/c2061679-291a-4fa6-b82a-f618d6dd7bb8/Dalia_BW.jpg Unsung - Dalia Dalia Kinsey is a Registered Dietitian and Inclusive Wellness specialist with over a decade of experience working at the intersection of holistic wellness and social justice in public and private sectors. Dalia rejects diet culture and teaches people to use wellness as a self-care and personal empowerment tool to counter the damage of systemic oppression. Host of the Body Liberation for All podcast and author of Decolonizing Wellness: A QTBIPOC-Centered Guide to Escape the Diet Trap, Heal Your Self-Image, and Achieve Body Liberation, Dalia continually creates wellness tools and resources that center the most vulnerable, individuals that hold multiple marginalized identities. Dalia’s work can be found at https://www.daliakinsey.com/ https://unfixedmedia.com/unbound daily 0.75 2025-11-14 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1731951797238-M0K1SM24ECCAEPJJN2C8/UNBOUND_sm.jpg Unbound https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1731951389573-0Z0BEE6JSRBMATYLX5WM/Unbound_blue.jpg Unbound https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/bbe65a19-d947-4f40-ac87-e3ce91b5b1b2/UNBOUND_sm.jpg Unbound - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1746121402579-C4MGNP5X4WOXAOIHM8AJ/SaraN.jpg Unbound - Sara Sara Nesson, director of “Unbound,” is an artist, writer, and dramatist with a lifelong passion for all things creative. Sara was an avid swimmer, kayaker, and cyclist before her life was altered by ME/CFS. She now tours original monologues to communities around the country, online, leads a group for artists living with chronic illness, and hosts short dance parties with her husband and two high-personality cats in the living room. Sara lives on a sleepy hillside in Marin County, California, with deer, coyotes, and wild turkeys as neighbors. “Unbound” is her first venture into film and she’s grateful to every dancer in the project for their courage in joining her. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418650464-HJIXNM5XPB0ULPJY4ZGJ/MartinKeoghSQ.jpg Unbound - Martin Martin Keogh, AKA The Missing Neighbor. Along with being a parent of four, and now grandparent of four, I once toured several continents a year as a professional dancer. I lived a full, engaged life. Then one day I was struck by Myalgic encephalomyelitis (ME/CFS) that left me mostly homebound and partly bedridden. Amidst the tsunami of symptoms, I’m granted a smidgeon of time each day when I’m able to apply myself creatively. This led to authoring the book: Naked Realities: Living with an Invisible Chronic Illness. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418643813-STZTKG8WBNU1UW7OL49P/AmyS_SQ.jpeg Unbound - Amy Amy S. (she/they) is a person living with long COVID and ME/CFS, having first been infected with COVID-19 in March 2020. Although now disabled and unable to work, they are a licensed social worker and spent their 25-year career advocating for victims of domestic violence, human trafficking, sexual assault, child abuse, and trauma. Their work evolved in later years to include trauma from an anti-racist/anti-oppression lens. They now use this wealth of experience to advocate for long COVID and ME/CFS funding and research whenever possible. Amy also writes the Substack newsletter The Tonic, which provides a lighthearted yet informative take on long COVID, ME/CFS, and other health conditions. Amy is a proud spouse, sister, auntie of six, great auntie of one, godless godmother of three, cat mom, hiker, writer, reader, and word game enthusiast. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418648295-U5U8V4TPDDNP53EK7FUZ/Lily.jpg Unbound - Lili Lili Fox-Lim is an actor, writer, and filmmaker based in Los Angeles. In high school, she was a lauded athlete and an Academic All-American lacrosse player, but in her last year of college at Stanford, Lili was thrust into battle with ME/CFS, eventually becoming mostly bedridden. Exercise and movement was a huge part of their life growing up, and was suddenly lost - now it is being unearthed in new, smaller ways. Maybe, just maybe, that Lili wasn’t entirely lost. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1744045057042-68UFXL1Z4988DRIMI670/Iman_BW.jpg Unbound - Iman Iman Rahman (they/she) is a chronically ill artist who shares their experiences navigating Disability and the medical system with honesty and heart. A Disabled dancer and writer, they turn to art therapy as a source of comfort, joy, and expression through pain. A self-described softheartist, Iman creates from a place of deep feeling, exploring themes of belonging, embodiment, and healing. The arts have long been their sanctuary—a space to release, reflect, and connect. Living with Disability has only deepened and enriched their creative life. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418644500-E5C1LVPK0IDBM68ZOSD2/CrowSQ.jpg Unbound - Crow Crow (they/them) is a neuro-queer, trans educator, social worker, artist, poet, and single mama. Crow is also chronically ill and disabled by both ME/CFS and Long COVID. They began to experience symptoms of ME/CFS as a teen. For decades they would seek medical explanation, tests, diagnosis, relief, and simply to be believed. They were finally diagnosed with ME/CFS by an Infectious Disease Specialist following their first COVID infection, early pandemic, when the severity of their symptoms spiked dramatically. After a second COVID infection a few years later, Crow became disabled and was officially diagnosed with Long COVID. They are passionate about the power of storytelling as advocacy. Crow believes that truth-telling, despite stigma, carves a path to social change. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418651792-5ESX3ZQDS6G1UWE71E3P/Molly.jpg Unbound - Molly Molly Freedenberg (she/her) is a writer, dancer, artist, and disability advocate living with severe ME/CFS in Southern California. She received a creative writing degree from Reed College, was an editor for the San Francisco Bay Guardian, and has had work published in The L.A. Times and Bust Magazine. She has also co-founded, co-run, or been a founding member of a number of dance troupes, arts organizations, intentional communities, and events. She now writes the Substack newsletter Well, Actually, which explores her life, and culture at large, through a disability lens. More Info: Molly first fell ill after a viral infection at age 17, but was not diagnosed with ME/CFS (and its family of co-morbidities) until she became housebound and mostly bed bound at age 39. She has spent the subsequent eight years learning to balance attempts at improvement with acceptance of what is, to find meaning and joy within the limits of invisible illness, and to engage with the art forms, culture, and people she loves in new, gentler ways. She is very into Somatic Experiencing Therapy, pop culture, audiobooks, and speaking truth to power. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1763662696880-3ZDVCIMZ99VG3O2V17BO/Screenshot+2025-11-20+at+10.16.56%E2%80%AFAM.png Unbound - Sean Sean is a person living with ME/CFS, POTS, and MCAS since a mild Covid infection in 2022. His experience with chronic illness has deepened his work in healing, mindfulness, and creative expression. Through his writing and community projects, Ian explores themes of rest, resilience and the human spirit’s capacity to adapt. His work invites others to slow down, reconnect with nature, and rediscover meaning in stillness. He is cat dad to two sister cats and finds joy in gardening, music, and quiet moments filled with chocolate and espresso. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1748964492012-JZ643BG0WNBR6FSENX8U/Chimere_BW.jpg Unbound - Chimére Chimére L. Sweeney is a retired educator and Long Covid activist, writer, and lecturer. Experiencing racism and discrimination while obtaining medical treatment for Long Covid and drawing from teaching underprivileged students in Baltimore, her mission has always been clear: inspire and empower Black patients to tell their unique stories on the physical, mental, and financial effects of Long Covid. From sharing her testimony with Congress to recently being a featured guest on The Washington Post’s Post Live, Sweeney’s message on aiding Black and disabled Long Covid patients in advocating for equitable health care is both passionate and honest. Chimére became a compassionate, trusted figure in the Long Covid community by aiding Black patients with receiving medical care and hosting social events that are inclusive and accessible, including #TheTealReveal, a virtual prom for disabled Long Covid patients that also provided mutual aid to participants in need. This year, she organized #BLCEBHMSocial: Chronically Committed, a 10-day social media campaign to observe Black History Month for disabled Black people with Long Covid. This effort was supported by Long Covid and ME/CFS patients along with prominent community organizations with focuses on both health conditions. Sweeney is a graduate of Morgan State University, earning a BA in English/Literature and Language. She is the curator and writer of The Blackest Side of Long Covid and host of The Blackest Side Podcast via Substack. In her spare time, she pet-sits and loves to paint. She lives in upstate New York with her husband, Taurean Sweeney. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418645923-8KS66RRFU28ENJJK9G61/JimA.jpg Unbound - Jim I got ME/CFS in 2011 from a bad illness. Prior to that I was busy as an engineer and parent of two girls. For activity I would jog early morning, bike to work, and play hockey once a week for fun. Due to passing out during the initial illness, my first diagnosis was concussion. But my thinking ability never came back. It took many years to get the CFS diagnosis. Now I live quietly by myself and have a late morning routine of stretching and exercise. I have accepted my condition and feel good if I accomplish one small task a day. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418651142-V0O66GTE96SHPGIP2A41/MMcIntyre.jpg Unbound - Mary Mary McIntyre is a photographer, journalist, and creator who spent over a decade traveling and chronicling adventures in the Himalaya, Andes, Africa, the Arctic, and many places in between. She is dedicated to preserving the wildness of our world and supports this through her love for storytelling, both narrative and visual. While chronic illness is currently causing her to reimagine her approach to life and work, she generally loves to combine her interest in travel, history and personal connection to share stories of the world's people and places, documenting the diversity of human experience. She has now turned her lens on the territories she calls home, where she splits time between Boulder, UT, and the central Wasatch. Her photography, writing, and silversmithing aims to celebrate and share the wonder and beauty of the natural world around us. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418645427-OTV9DI5RG7XR4IV5A4CS/Hanah_BW.jpg Unbound - Hanah Hanah Yendler would describe herself as a paint brush wielding, scone baking, copious tea brewing witch. After a difficult form of Long Covid turned Hanah into a mostly indoor cat, Hanah enjoys making art, picnicking with her tea set, and working long covid patient advocacy. Previous to being sick, Hanah was a swing dancer for almost 15 years, performing and teaching regionally in the Bay Area. Out of everything she has lost due to Long Covid/Myalgic Encephalitis/Chronic Fatigue Syndrome, Hanah misses dancing the most keenly. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418646918-CLG6EQ50G5HRMYJ95OU1/Judy.jpg Unbound - Judy Judy Shook enjoys being an Ensoulment Coach, artist, InterPlayer, and ritualist. She holds both a Masters of Divinity and a Masters of Creation Spirituality. Judy’s experience includes sneaky deep wisdom practices as a certified InterPlay leader, and shamanic training. As someone living with a chronic illness, Long Covid since November 2020, she brings practices of compassionate, soulful, and artful living. Her classes include deepening your connection to spirit allies, ancestors and creation. When she got long Covid, her life became even more focused on the wisdom of her Cherokee, Wyandot, and Celtic ancestors and the spirits of place. Today, she braids her initiations with Indigenous experience alongside Hawaiian teachings, Methodism, InterPlay, and Creation Spirituality into a sacred way that is dedicated to Earth, BIPOC, women’s, and LBGT rights. Grounded in shamanic drumming and the arts of Ensoulment, she is guided to serve in ceremony and spiritual direction. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418647805-8ATROVC4NTFC66H9Y9BQ/LiaPas.jpg Unbound - Lia Lia Pas is a disabled Canadian multidisciplinary artist working in image, text, and sound exploring body and states of being. Before becoming disabled with ME/CFS in 2015, she worked as a composer/performer and wrote music for movement artists. Her recent work includes: embroideries in numerous online galleries, in the anthology Sharp Notions, and in the SKArts permanent collection; poetry and essays in Epistemic Lit, Arc Poetry, and Classical Wisdom; and music in Opera Mariposa's ME/CFS benefit. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418649409-PKNV5NQQ3T9CAZ0PVH4S/Lucien.jpg Unbound - Lucian Lucian is the creator of Embodied Emotional Processing (a somatic psychotherapeutic technique), an LMT, an embodied vocal coach, a jazz/blues singer and an artist. Before they became severely ill in 2020, they loved swimming, backpacking, taught yoga, hiked, ran, traveled, danced…had a very mobile life. Covid changed all of that. In August of 2024, after years of debilitating illness, they were diagnosed with Long Covid, Mold Poisoning, Lyme Disease, and Compound Autoimmune disorders. They have spent these years of illness really holding the question, how can I love my body and live an embodied life with chronic illness? How can I find mental and spiritual health with this wound? They live in Boulder, UT with their dog, Verbena, their cat, Winter and some stunning views. They dance in small doses at night before bed to terrible pop music that they secretly love…each dance is a reminder that they are still alive. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1740418653149-OCYTM6XEY0JS7SZCR2VQ/SabineSQ.jpg Unbound - Sabine Sabine Miller is a writer, artist, and breath coach. For thirty-five years, she has used qigong and meditation to heal from chronic pain and improve function. She lives in California. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1763662736462-6NXBMWABO1GY76D1DJP2/Screenshot+2025-11-20+at+10.16.56%E2%80%AFAM.png Unbound - Mel https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1746033331687-R3VLBN1FBU9IMLORE7J2/Karin_headshot.jpg Unbound - Karin Karin is reinventing herself and focusing on her creative side after becoming disabled by chronic illness. She loves finding ways to immerse herself in nature, once through activities such as running and backpacking, and now through more meditative pursuits such as her newfound interest in birding. Her life is currently governed by the need for deep rest and energy conservation. However, as a result of her illness, she has directed her available energy to creative expression in a variety of mediums, including paper making, embroidery, cyanotype, watercolor, quilling, and collage. These activities, sometimes accomplished a few minutes at a time over weeks and months, bring her joy and purpose. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1761953752243-TVZEJPF7ZU9YUC00SGFA/Jinzu.jpg Unbound - Jinzu Rev. Jinzu Minna Jain (they/them) is an artist, writer, Zen Buddhist priest, and racial & systemic equity educator. They work with alternative photographic process printmaking, wearable sculpture and storytelling, exploring collective sense-making, liminality, and liberation. Jinzu believes in art and spirituality practices that cultivate collective care and liberation, so that we may meet ourselves, one another, and these harrowing times with stillness and courageous action. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1763418434554-Q1V7G7H9VACSJ1IY2W4A/NancyShapiro.jpg Unbound - Nancy Nancy G. Shapiro is the author of The Book of Calm: Clarity, Compassion and Choice in a Turbulent World, and writes Gathering Calm on Substack. She has thoroughly enjoyed her other creative outlet of life coaching for the last twenty years, and thrives in the presence of her husband Barry, her friends and family, Teddy the dog, and Mother Nature in all of her glory. Her contribution to the Unbound project was her first attempt at a spontaneously choreographed dance. https://unfixedmedia.com/new-page daily 0.75 2024-11-20 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648753281972-P48Z52M8Q8UOTCYVCNQ0/White_background.jpg contact https://unfixedmedia.com/contact daily 0.75 2022-11-12 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648753318677-GLG1ST8QYDVDDQEMJOZ1/White_background.jpg Contact https://unfixedmedia.com/press daily 0.75 2020-08-17 https://unfixedmedia.com/press-1 daily 0.75 2026-03-13 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/bfb8c326-41f6-4d96-8223-b7d9c5767df7/Screen+Shot+2024-01-15+at+8.57.12+AM.png Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1f9264c1-98cb-4304-b36f-13f04157502c/KOINCONVO.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/4af810ce-11fd-48b8-b03e-73ac272ebf9e/HSC_e.jpg Press - 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Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/donatewhywematter daily 0.75 2021-09-22 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1632352073559-CBSVMZUHDACK1Y60NMQ5/OPT2.jpg Why We Matter - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/who-we-are daily 0.75 2026-02-03 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648755676329-TNIBKCTS85N3OYK22IXZ/White_background.jpg who we are https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/ea31d36d-3a3a-4a02-978f-0d081da30541/DC5A6280bwsq.jpg who we are https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/6ca890c5-9664-4e8e-84ec-1cb6fc6112a5/head2-2.jpg who we are - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://unfixedmedia.com/collaborators daily 0.75 2025-06-03 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1648753614154-GSMKX54LVSUMJTPOOSP2/White_background.jpg collaborators https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1620671083141-2H20YBQ6IRNHGOK6SVKP/Annie_Herosm.jpg collaborators - Dr. Annie Brewster Dr. Annie Brewster is an Assistant Professor of medicine at Harvard Medical School, a practicing physician at Massachusetts General Hospital, in Boston, a writer and a storyteller. She is also a patient, diagnosed with Multiple Sclerosis in 2001. In response to the disconnection she experienced in healthcare, both as a patient and a provider she founded Health Story Collaborative (HSC) in 2013. HSC is dedicated to helping individuals navigating health challenges find meaning, and ultimately heal, through storytelling. She is excited by interdisciplinary, cross-institutional collaborations that break through resistance to change. She is widely published and a frequent public speaker. Her new book, The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma, and Loss, will be out February 1, 2022. Annie and Unfixed are co-directing the Unfixed Mind: Navigating Mental Health Today in 2023. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/63bd65d4-c7c2-4328-979f-c92c79955dc9/Dr.%2BMoyez%2BJiwa%2Bauthor%2Bof%2BThe%2BArt%2Bof%2BDoctoring%2Btalks%2Babout%2Bhow%2Bto%2Bbe%2Ba%2Bgreat%2Bdoctor%2Bon%2Bthe%2BStories%2Bof%2BTransformation%2Bpodcast.png collaborators - Dr. Moyez Jiwa Dr. Moyez Jiwa is a family physician, associate dean and professor of Health Innovation at the Melbourne Clinical School, University of Notre Dame.working in Australia. He is also Editor-in-Chief of the Journal of Health Design. He was the author of the book on the Art of Doctoring and the host of the Health Design Podcast. Moyez believes that doctors can heal even when it is not possible to cure and the best companions are those who nurture us when we are broken. Moyez and Unfixed co-created The Course for Clinical Confidence, a certificate course for medical students. Journal of Health Design, Mettle Health and Unfixed are a consortium of aligned organizations working together to create human-centered patient experiences and elevate their narratives. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/1620667414397-5TB0FWNJNKT0MLGXVQPM/Elizabeth_MSConfidentialsm400.jpg collaborators - Elizabeth Jameson Elizabeth Jameson is an artist and writer who explores what it means to live in an imperfect body as part of the universal human experience. Before her diagnosis of multiple sclerosis, she served as a public interest lawyer representing incarcerated children and those living with chronic illness. As her disease progressed, she began using her MRI’s to create art as a way of reclaiming agency of her own medical data. Her work is part of permanent collections both nationally and internationally, including the National Institutes of Health, major universities, and medical schools. She now writes personal essays and speaks across the country sharing her experiences living with illness and disability. Her essay, “Losing Touch, Finding Intimacy,” was included in the New York Times book, About Us, released in September 2019 by Norton Publishing. Elizabeth directs MS Confidential, an Unfixed media production. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/0a7e6ebc-4eb6-45da-812b-7021c04ca5a8/MichealBW.jpg collaborators - Michael Wolcott Michael Wolcott is an Emmy award-winning filmmaker who has made films for public television and worked with nonprofit organizations to create fundraising films as well as other content. From the terrorist attack in San Bernardino, CA to women dealing with vesicovaginal fistulas in Chad, the stories he’s been a part of telling strive to help make a positive impact. Michael joins the team as editor of Long Haul Voices, Unfixed Mind, Life Rebalanced Chronicles: Season II, and the short-film Unsung https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/51409d48-4341-4330-a59e-02985e84f0c0/gus1.jpg collaborators - Gustavo Serafini Gustavo Serafini holds two degrees from University of Chicago and a law degrees from George Washington. He is an entrepreneur and founder and host of The Enabled Disabled Podcast. Born with proximal femoral focal deficiency (PFFD), disability has taught Gustavo many life lessons, and allowed him to meet with incredible friends and mentors along the way. The Enabled Disabled Podcast is created for people with disabilities, as well as their families, friends, clinicians and therapists. The platform helps dive into how our guests have experienced disability; what has it taught them about themselves, about life, about others; what tools or experiences have helped them to better navigate and adapt to the world; what do they wish other people knew about them; what are they working on now; how would they like to improve the world. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/33f1b3ec-9197-41f8-b7f8-fb32f8090d28/artworks-LGhVbX08NaVD3BJd-ozX7zw-t500x500.jpg collaborators - Cynthia Ryan Cynthia Ryan is Executive Director of the VeDA - Vestibular Disorders Association. She has worked in non-profit management for over 15 years, and previously was General Manager and Vice President of a financial research firm. Cynthia's mother, Eileene, suffers from Meniere's Disease. VeDA, Cynthia and Unfixed/Kimberly Warner collaborate on the Life Rebalanced Chronicles and co-host and co-produce the ICU (I See You) Podcast. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/0190c7c3-b7f8-4b76-b043-480a3fca246c/DeFabio_Daniel-web-263x263.jpg collaborators - Daniel Defabio Daniel Defabio is Associate Director of Global Genes. At the age of 12 months Daniel’s first child Lucas was diagnosed with the rare disease Menkes Syndrome. His documentary about his son’s story led to Daniel co-founding DISORDER: The Rare Disease Film Festival and later The Disorder Channel, both dedicated to spreading awareness for patient families facing any of the more than 7,000 rare diseases. Daniel has created videos and marketing materials for American Cinematographer, PBS, RightRice, bio-techs, hospitals, most major movie studios, TNT’s “The Closer” and HBO’s “Curb Your Enthusiasm” among others. Daniel, Global Genes and The Disorder Channel collaborate with Unfixed on a number of workshops and content creation/distribution that empowers patients to tell their own stories through film. https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/b676a116-1b01-4950-b289-c793dc351610/SaraN.jpg collaborators - Sara Nesson Sara Nesson is an artist, writer, and dramatist with a passion for storytelling in its many forms. She was working as a Jewish teen mentor before a diagnosis of ME/CFS (chronic fatigue syndrome) reshaped the arc of her life. Driven by a desire to celebrate the creative potential in bodies of all abilities, Sara now tours original monologues to audiences around the country and facilitates a cohort for artists living with chronic illness. In partnership with Unfixed Media and Kimberly Warner, Sara is directing Unbound, a collaborative dance film that explores the tension between limitation and freedom through the language of movement. https://unfixedmedia.com/new-page-54 daily 0.75 2025-12-02 https://unfixedmedia.com/new-page-38 daily 0.75 2025-12-02 https://images.squarespace-cdn.com/content/v1/5d810c0eb2b4261fd8fb4b62/c44f927c-d6d5-4e66-8517-6bc544f4a708/Screenshot+2025-11-29+at+10.50.11%E2%80%AFPM.png PW - Make it stand out Whatever it is, the way you tell your story online can make all the difference.